“I stopped sharing because” – One very powerful response to the question of why on

Below are the words of one woman who shared with me why she stopped sharing about having covid and long-covid. I beg you to read her response and see how truly powerful her words are.

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“[I tested positive in September, admitted [to the hospital, discharged] and readmitted [a week later] … I was given Convalescent plasma, Remdesivir and dexamethasone while I heard and watched the lady across the hall die as she was waiting on approval to get the same meds.”

“I stopped sharing updates because [people] assume we are healed once the obvious symptoms are gone.

I stopped sharing because people don’t always say the right things and it’s hurtful.

I stopped sharing because it’s not my job to help them understand long haulers when I’m barely able to always understand.

I stopped sharing because many [people] are going about their lives while not always adhering to the social distancing guidelines and they are fine. Meanwhile, I was hyper vigilant because my daughter has [a chronic disorder] and ended up getting it from a doctors office.

I stopped sharing because now …many of my organs have been damaged.

I stopped sharing because people tell me they are glad I’m feeling better when I’m confined to my bed and chained to this oxygen concentrator.

I stopped sharing because I’m pissed off because I feel like I don’t deserve this and now the life I loved has been robbed from me.

I was once healthy, riding my bike 8-10 miles per day, just had a clean bill of health via physical labs and images.

Now, 37 days later, I’m told I have congestive heart failure, scarred lungs, full blown insulin dependent diabetic (was not a diabetic before this) yet now I have to take 4 injections per day.

I stopped sharing because my energy needs to be conserved for my survival and ensuring my husband and our daughter are okay.

I stopped sharing because I was told my life expectancy could be 3 months to a few …years and I don’t want to deal with others who think they know more then the doctors.

I stopped sharing because I seek compassion and not pity.”

#covid #longhauler #hospital #voicesofthevirus #longcovid