Tests and retests

I recently had my newest round of doctors appointments.

Every meeting with a doctor these days goes the same. Most admit that these are uncharted waters and it’s all tests and theories. That, I think, is a sign that you are at a good doctor. I think it’s probably not a good sign if your doctor is over confident.

Next, they lay out the tests you have to take, the medicines you need to try, the lifestyle changes and treatments that you have to undergo. And then, they tell you to try it. And then, you have to check back in with them and see if it worked.

And I am left feeling overwhelmed as I do my best to try to figure out how to implement all these changes and schedule all these tests using the little energy and brain capacity that I have.

It’s all so confusing.

Add to that the frustration of knowing that the tests you’re taking may still miss something and you definitely start to feel like you are swimming upstream.

I learned the hard way that you shouldn’t put blind faith in the tests the doctors run. You also need to listen to your body and trust your instincts. I’ll talk about that more in another post.

Luckily I am, by nature, a methodocal person. So, I do my best to write it all down, put it in a sequence that I can understand and implement, and treat myself like a science experiment.

My step 1 is get through the tests and try to make sure all the doctors have all the records. And just managing that while fighting fatigue, pain, confusion, and fighting with the insurance company and bill collectors is taking a massive amount of effort.

Currently, my health is my full time job. I’m lucky enough to be able to do this. There are so many who aren’t as lucky.

#covid #longhauler #doctor #longcovid #medical